Dear Friends,
As many of you know, when Elizabeth was sixteen she got the shock of a lifetime. What should have been a fun weekend away marked the beginning of her journey. We went to Las Vegas to visit family who was fleeing from hurricane Katrina. Everything seemed to be fine. However, when we were all walking to dinner Elizabeth started feeling “funny.” We all thought it was because we had not eaten. Liz never did eat anything that night. When we all sat down to dinner she had a grand mal seizure. The doctors at the hospital all said it was probably a one time thing, but to go to our doctor when we got home. After going to a neurologist and having tests done it was decided that this was not a one time occurrence. Elizabeth was diagnosed with Epilepsy.
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy.
Seizures can last from a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs. There are many different types of seizures. The kind of seizure a person has depends on which part and how much of the brain is affected by the electrical disturbance that produces seizures.
I wish I could tell you that there was a cure. There's not. Because epilepsy is a brain issue, it is unique to every individual that has it. Some can manage with drugs, some grow out of it and some will deal with it every day of their lives.
This is not the world I want people with epilepsy to live in. I want a cure. I want to fix it. But I can't, so I'm left with the next best thing. I want everyone to be knowledgeable and compassionate. To understand what to do if someone I know has a seizure.
I cannot do that alone. The Epilepsy Foundation of Arizona has the programs to help accomplish these things. They just don't have the funding, this, I can fix.
Please join me for the 2011 Phoenix Epilepsy Walk and walk with my team, Leaping ‘Liz’zards. The walk is Saturday, April 2nd at Steele Indian School Park 300 E. Indian School Rd. Check in is from 8-9:30am. The walk begins at 9:30. To walk with us, or sign up to join our team and fundraise yourself, follow the link below:
http://www.kintera.org/faf
As much as I want you to join us, I really want you to open your wallet more. If you cannot make it, please think about sponsoring one of our Team Members! I'm hoping everyone I know can give at least $10. And I do mean everyone. Certainly feel free to donate more than that - but I'm hopeful that you can at least give up a latte for a day and help.
I am incredibly grateful for your help and hope to see you on the 2nd! If you are joining us for the walk, please let either Liz or Susan Huber know what T shirt size you would like.
All our best,
The Huber Family
PS - If you'd like more information on epilepsy, visit the Epilepsy Foundation of Arizona’s website at www.epilepsyfoundation.org
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy.
Seizures can last from a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs. There are many different types of seizures. The kind of seizure a person has depends on which part and how much of the brain is affected by the electrical disturbance that produces seizures.
I wish I could tell you that there was a cure. There's not. Because epilepsy is a brain issue, it is unique to every individual that has it. Some can manage with drugs, some grow out of it and some will deal with it every day of their lives.
This is not the world I want people with epilepsy to live in. I want a cure. I want to fix it. But I can't, so I'm left with the next best thing. I want everyone to be knowledgeable and compassionate. To understand what to do if someone I know has a seizure.
I cannot do that alone. The Epilepsy Foundation of Arizona has the programs to help accomplish these things. They just don't have the funding, this, I can fix.
Please join me for the 2011 Phoenix Epilepsy Walk and walk with my team, Leaping ‘Liz’zards. The walk is Saturday, April 2nd at Steele Indian School Park 300 E. Indian School Rd. Check in is from 8-9:30am. The walk begins at 9:30. To walk with us, or sign up to join our team and fundraise yourself, follow the link below:
http://www.kintera.org/faf
As much as I want you to join us, I really want you to open your wallet more. If you cannot make it, please think about sponsoring one of our Team Members! I'm hoping everyone I know can give at least $10. And I do mean everyone. Certainly feel free to donate more than that - but I'm hopeful that you can at least give up a latte for a day and help.
I am incredibly grateful for your help and hope to see you on the 2nd! If you are joining us for the walk, please let either Liz or Susan Huber know what T shirt size you would like.
All our best,
The Huber Family
PS - If you'd like more information on epilepsy, visit the Epilepsy Foundation of Arizona’s website at www.epilepsyfoundation.org
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